Sorry I haven’t updated for quite a few days – it’s mainly because nothing seemed to be changing and I was waiting in hope for something to break the cycle… Still having a low-grade fever, and with an infection marker showing a possible bug, I was still getting antibiotics and starting to wonder whether I’d ever get out. My neutrophils were down to 0.0 and I did indeed have a PICC line put in.
The line went in easily enough, and has been working fine, but unfortunately there’s been some ‘mechanical irritation’ – my upper arm is swollen and pretty sore. Michaela, who put it in, will hopefully have a look at it tomorrow, but I’m not quite sure what the options will be. The doctor mentioned something anti-inflammatory, though I haven’t had it yet, or they might have to take the line out. Which would be very annoying! I don’t have much luck with lines.
Meanwhile, my neutrophils are climbing (0.4 today) and the high infection marker is falling, so hopefully my temperature will come down too. The doctor seemed quite positive about that, particularly because if there is any infection, the neutrophils should now be able to whack it. Hurrah for neutrophils! However, we all know by now that nothing is certain, so I don’t want to get excited about getting out just yet.
One excitement this week, though, was meeting the Mayor of Wandsworth, who had heard a couple of ex-RMU patients extol the virtues of the ward, and decided to visit. I was nominated as one of the patients for him to talk to, so in he came with his white hair, beard, enormous height and massive bling. Well, his mayor’s chain. He seemed a nice feller.
Another excitement I’d LOVE to be out for is the OMV Autumn Drinks Party this Friday, particularly because of last year. I went along, a couple of days before my appointment with the haematologist, and was quite soon a bit of a wreck, ending up in A&E because I was in such agony. So I would love to be able to make a healthier appearance, to show how much better I am, rather than my friends thinking ‘remember last year, George was very ill… Is he here tonight? Oh, no, he’s still in hospital’. It would be a psychological boost, as well as lots of fun…
I’ll keep you all updated on anything that changes – hopefully as soon as possible!