Oops – it’s been four days since I posted, which at first I put down to not having anything to say, but then I remembered my trip to the hospital on Friday…
It was a long day (my Dad and I left at about 8am and got back at about 7:30pm), but a pleasant one. I had to go in for kidney and blood tests, which happened at some point in the morning, and showed that my haemoglobin was a bit low. I wasn’t surprised, as I’d been very lethargic last week, so it was good to get the boost of a blood transfusion that afternoon. Otherwise I think the tests were fine.
I also introduced my father to the delights of Peabody’s, purveyors of the best coffee in St George’s (and decent panini too), and discovered that it’s also the place to be, as I bumped into several people I knew (one former RMU SHO, one OMV doctor, one RMU nurse). Hurrah! I also met some lovely new people in the Daycare unit, which is a far more sociable place than the ward.
The trip also gave me a chance to clear up exactly what’s going on now, which I made the most of by having an incredibly confusing conversation with my consultant and registrar… I think I got there eventually, and currently this is how it stands:
- On Tuesday I’m going to the Royal Marsden, Sutton to meet a consultant and discuss when I’ll be going to them (for radiotherapy as part of the autograft, though I’m not sure how long I’ll be there).
- I will be seeing the transplant consultant at St George’s either on 13th March, or possibly sooner if he has a spare moment. We’ll discuss dates etc for the stem cell harvest and autograft.
- Only then will I have my final dose of methotrexate and asparaginase.
- At the optimum moment (maybe 10 days / a couple of weeks) I’ll have my stem cells harvested.
- Some time after that (a month or two??) I’ll have my autograft.
That’s as much as I know at the moment, and as you see there’s quite a lot, particularly regarding dates, still up in the air. There are a few thinsg I really would like to be out of hospital for, namely Tomandalice’s wedding (1st April), the Easter Retreat at Downside (13th-16th April) and my graduation (6th May), but we’ll have to see…
Since (and before) Friday I haven’t been up to much. Resting and relaxing as ever… I’ll update more often again, though my subject matter could end up being anything when I’m not actually having treatment. I’ll try to think of a joke for next time.