Je suis chez moi.
Hurrah! After a tough second half of Phase 2 (’twas pretty horrid), then that blasted infection (even horrider: the Monday it kicked in was probably the most unpleasant day I’ve had), an even stronger aversion to hospital food, much bed-swapping, nasty side-effects from the antibiotics and a great difficulty in sleeping well (the antibiotics often didn’t finish til 1am, and until then needed to be replaced and flushed a couple of times at least; observations still happened at 2am and 6am; then the new cleaner had a propensity to switch on the main light at 8am so she could replace the bin liner, and would then leave it on; I often needed to dash to the bathroom several times in the night; my room was noisier – though this was nice in many ways as I felt much less isolated), it is brilliant to be out. It was all a bit rough, though fortunately not quite so rough as to dampen a stout young fellow’s spirits too much.
It’s good to be able to blog again too – sorry I’ve failed to do so for a while but thank you so much Daddy for keeping everyone updated. My energy levels were very low and the thought of picking up my computer, turning it on, loading it up and typing wore me out in itself… I managed to get out of the room and get a bit more exercise towards the end of this stay (many thanks to Gobby for forcing me to get out of bed when I was terrified it would hurt), so am feeling stronger than I did when I got home last time. My neutrophils are pretty high – around 3 I think (apparently normal is between 4 and 11, not 1.8 as I formerly thought) – so bugs aren’t quite such a danger as last time; my white cell count is up to 4, well above the 3 necessary for the next stage; I can’t remember what my haemoglobin level is, but think and assume it’s ok; my platelets are still very down, though, somewhere in the 20s, and I need to be up to 100 before the next lot of chemo.
I’ll explain over the next couple of days about the next stage; I’ll tell you my autograft vs chemo dilemma; I’ll ask Adam whether I can post a link to some cool photos on his site of me and some of my beautiful friends; and I’ll try to make up for my recent lack of posts…
I hope everyone’s well – thank you again so much for comments, letters, cards etc, which really do help so much to keep life looking cheerful!