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Oops - it's been four days since I posted, which at first I put down to not having anything to say, but then I remembered my trip to the hospital on Friday...It was a long day (my Dad and I left at about 8am and got back at about 7:30pm), but a pleasant one. I … Continue reading Long time no post

For those who wonder about my wellbeing (rather than those freeloaders who like pictures of slapheads and hairdressers), my discomforts during this home visit have been:Mucositis - This isn't much fun: a really sore mouth and lower lip. It's not quite ulcers, but very painful to touch, making the consumption of hot drinks and acidic … Continue reading It’s hardly surprisin’

My home! Hurrah! Am home again, which is lovely, especially since this is for a just over a week - the longest I'll have been out of hospital since I went in at the end of October. I do have to pop back on Friday as a day-patient for a kidney test, and I've been … Continue reading They’ve put me in a home…

First things first: the asparaginase yesterday was, as expected, painful, though it wasn't quite as bad as last week. That may have been because I was dreading it so much, or may have been due to an alternative technique by the staff nurse. Anyway, it's done, which is the most important thing, so only one … Continue reading SLAP!

I had a lovely 24 hours at home, involving just one and a half bacon sandwiches and a delicious toad in the hole, as well as a good proper sleep and a proper amount of singing loudly at the piano. My pater had to drive a fair bit - what with picking me up and … Continue reading Aspaaaaaagggggghhhhhhraginase

PS What's the record for Valentine's cards received? I only wonder... 😉

...for just 24 hours. Need to be back in hospital by 4pm Tuesday, but at least this way the paterfamilias gets to use his new car!It'll be good to get out, albeit for such a short time.

It's a strange but, I suppose, understandable contradiction that you go to hospital to recover from illness, and they stop you from getting a decent night's sleep, which would surely help... Since I've been having folinic acid (to reduce the side effects of the high-dose methotrexate), I've had to be woken up at 1, 4 … Continue reading To sleep, to dream… Ay, there’s the rub

I just remembered today that apparently when I was little I used to say "um matter" (meaning "no matter"/"don't worry") a lot. I might take it up again, as it's a great phase and the kind of thing I often think.

Oops! Just realised there was some text missing in my last post. In case you were wondering, the randomiser waved its magic wand and came up with......the allogenic transplant.This morning I confirmed with my consultant that I'm happy with that option. I think it's the option I wanted to go for anyway, but felt I … Continue reading That randomised choice